iCureCeliac® Patient Registry
iCureCeliac® Patient Registry
iCureCeliac®: Advance Research with Targeted Recruitment and Patient Insights
iCureCeliac® speeds study enrollment by providing instant access to a diverse sample of more than 16,000 patients who meet your criteria – saving you time and money. Launched in 2016 as a research network funded by the Patient-Centered Outcomes Research Institute (PCORI), iCureCeliac® is the largest public celiac disease database driving novel research with dynamic health data and patient insights.
iCureCeliac®: Data-Driven Recruitment
Access our expansive database of demographic, biomarker, and healthcare data to pinpoint iCureCeliac® registry participants who match your subject profile and invite them to participate, quickly delivering highly-qualified and motivated participants to your study.
iCureCeliac®: High Impact Research
iCureCeliac® captures longitudinal health data across the entire diagnostic and treatment journey for people with celiac disease. Patients are empowered to contribute insights on the topics they care about most, ensuring that the future of celiac disease research reflects the diversity of real-world data. Validated instruments include the Celiac Symptoms Index (CSI), Celiac Dietary Adherence Test (CDAT), Celiac Disease Quality of Life Measure (CD-QOL), SF-36, PROMIS Gastrointestinal, PROMIS 29 Profile and PROMIS Pediatric 25 Profile.
Examples of Research Collaborations:
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Social Adversities Associate with Worse Disease Control in Pediatric Celiac Disease
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Celiac Disease Symptom Profiles and Their Relationship to Gluten-Free Diet Adherence, Mental Health, and Quality of Life
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The Virtual Celiac Symptoms Study: Reported Symptoms Over 12 Weeks in Adults
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The Virtual Celiac Symptoms Study: Reported Symptoms Over 12 Weeks in Adolescents
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The Virtual Celiac Symptoms Study: Symptom and Gluten-Free Diet Perceptions of Adolescents at Baseline
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Psychometric Validation of the Celiac Disease-Specific Quality of Life Survey (CD-QOL) in Adults with Celiac Disease in the United States
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The Virtual Celiac Symptoms Study: Symptom and Gluten-Free Diet Perceptions at Baseline
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Physician Management of Celiac Disease: A Comparison of Celiac Disease Knowledge, Diagnosis, and Patient Management Between Gastroenterologists and Primary Care Physicians in Germany, Italy, Spain, and the United States – Findings From a Real-World Survey
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Diagnosing Celiac Disease in the United States of America, Germany, Italy and Spain: Findings From a Real-World Survey
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Celiac Disease Symptom Flares Are Common During the Postpartum Period
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Probiotic Use in Celiac Disease: Results from a National Survey
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Experiences of a Gluten-Free Diet in Patients with Celiac Disease: A Multi-National Survey
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Disease Burden and Quality of Life Impacts in Patients With Celiac Disease on a Gluten-Free Diet
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Prevalence of Dermatitis Herpetiformis in iCureCeliac Patient Registry
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Patient Burden and Treatment Experience in Celiac Disease
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Adherence to the Gluten-Free Diet and Celiac Disease Patient Outcomes: Real World Evidences From an International Patient Registry, iCureCeliac®
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Numbers and Features of Patients With a Diagnosis of Celiac Disease Without Duodenal Biopsy, Based on a National Survey
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Forgoing the Duodenal Biopsy for Celiac Disease Diagnosis Among Adults in the United States: Results of a National Survey
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The Effect of Depressive Symptoms on the Association between Gluten-Free Diet Adherence and Symptoms in Celiac Disease: Analysis of a Patient Powered Research Network
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Autoimmune Diseases and Associated Conditions in Children and Adults with Celiac Disease from the Celiac Disease Foundation’s iCureCeliac® Patient-Powered Research Network
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Transition From Childhood to Adulthood in Coeliac Disease: The Prague Consensus Report